Graded Exercise Therapy

Contributors:

Members of the Workwell Team:
• Staci Stevens – Founder of the Workwell Foundation and Co-Vice President: International Association for CFS/ME;
• Dr Chris Snell – Former Chair of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) to the US Secretary for Health;
• Mark VanNess – Professor and Co-Chair, Health Exercise and Sport Sciences, University of the Pacific, California.

 Brian Hughes  Professor of Psychology, NUI Galway  – Author of Psychology in Crisis 2018 and Rethinking Psychology: Good Science, Bad Science, Pseudoscience 2016

Jonathan Edwards, Professor of Medicine, UCL – currently an advisor on research for the  NICE review of ME/CFS.

Resources.

The Workwell website  contains links to their research and further resources for managing exercise and ME/CFS.

‘Graded exercise therapy does not restore the ability to work in ME/CFS – Rethinking of a Cochrane review’ Vink, Mark and Vink-Niese, Friso. ‘ IOS Press. Work, vol. 66, no. 2, pp. 283-308, 2020  https://content.iospress.com/articles/work/wor203174?s=09&fbclid=IwAR0ulLHnZ3PJ2xYpd1JTCaj6rGjWSYe_qc5ZGob2sgKUttVgiEJE5DalW2I

‘Monitoring treatment harm in myalgic encephalomyelitis/chronic fatigue syndrome: A freedom-of-information study of National Health Service specialist centres in England’
Graham McPhee, Adrian Baldwin, Tom Kindlon, Brian M Hughes.  Journal of Health Psychology June 2019

An interview with Dr David Systrom and Lewellyn King describes the findings from invasive cardiopulmonary testing in exercise intolerant patients with an ME/CFS diagnosis. “.. a phenomenon called internal preload failure – the inability or unwillingness of large veins in the legs, abdomen, and pelvis to push blood up to the right side of the heart – is ubiquitous for ME/CFS patients.” A new interview with Dr Systrom in Belfast will be included in this project later.

Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT   Carolyn E. Wilshire, Tom Kindlon, Robert Courtney, Alem Matthees, David Tuller, Keith Geraghty & Bruce Levin BMC Psychology volume 6, Article number: 6 (2018)

Journal of Health Psychology : Special issue on the PACE Trial – David F Marks  July 2017

Work by David Tuller exposing the PACE Trial:  Oct 21, 2015 – TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study   Oct 22, 2015 – TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study (second installment)   Oct 23, 2015 – TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study (final installment)

Monitoring treatment harm in myalgic encephalomyelitis/chronic fatigue syndrome: A freedom-of-information study of National Health Service specialist centres in England. Graham McPhee, Adrian Baldwin, Tom Kindlon, Brian Hughes.  Journal of Health Psychology 2019  https://doi.org/10.1177/1359105319854532

With thanks to Graham McPhee, Tom Kindlon and John Peters for their advice on  aspects of the PACE Trial and appropriate graphs.