Graded Exercise Therapy

Contributors:

Members of the Workwell Team:
• Staci Stevens – Founder of the Workwell Foundation and Co-Vice President: International Association for CFS/ME;
• Dr Chris Snell – Former Chair of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) to the US Secretary for Health;
• Mark VanNess – Professor and Co-Chair, Health Exercise and Sport Sciences, University of the Pacific, California.

 Brian Hughes  Professor of Psychology, NUI Galway  – Author of Psychology in Crisis 2018 and Rethinking Psychology: Good Science, Bad Science, Pseudoscience 2016

Jonathan Edwards, Professor of Medicine, UCL – currently an advisor on research for the  NICE review of ME/CFS.

Resources.

The Workwell website  contains links to their research and further resources for managing exercise and ME/CFS.

An interview with Dr David Systrom and Lewellyn King describes the findings from invasive cardiopulmonary testing in exercise intolerant patients with an ME/CFS diagnosis. “.. a phenomenon called internal preload failure – the inability or unwillingness of large veins in the legs, abdomen, and pelvis to push blood up to the right side of the heart – is ubiquitous for ME/CFS patients.” A new interview with Dr Systrom in Belfast will be included in this project later.

Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT   Carolyn E. Wilshire, Tom Kindlon, Robert Courtney, Alem Matthees, David Tuller, Keith Geraghty & Bruce Levin BMC Psychology volume 6, Article number: 6 (2018)

Journal of Health Psychology : Special issue on the PACE Trial – David F Marks  July 2017

Work by David Tuller exposing the PACE Trial:  Oct 21, 2015 – TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study   Oct 22, 2015 – TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study (second installment)   Oct 23, 2015 – TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study (final installment)

With thanks to Graham McPhee, Tom Kindlon and John Peters for their advice on  aspects of the PACE Trial and appropriate graphs.