Prologue

“What a lot of pain and heartache could be spared if all doctors were properly informed and able to guide their patients in those crucial early stages.”

–  Kay Gilderdale.
Kay’s daughter Lynn died after sixteen years of very, very severe ME, precipitated by graded activity management.

“Much as researchers want to make breakthroughs and help patients, their profession rewards them for publishing studies that are quoted by other researchers and winning funding for their research. They are not specifically rewarded for benefitting patients.
Researchers’ career progression – and often their very jobs – depend on these academic measures of success, and so that is what researchers will inevitably focus on.”